Wednesday, December 14, 2011

More Good News

     More good news!  Sawyer had his hearing tested today and his audiologist says it is "perfect". 

     Some kids with genetic issues like Sawyer have hearing problems and many other issues.  Sawyer's doctor has been ruling out other problem areas.  For today, we can check this one off the list. WooHoo! 

     We are grateful for God's mercy and provision for our boy!

Tuesday, December 13, 2011

Emma! has been for good reason these last several months.  However, today is a good day to shift the focus because it is Emma Marie DeBause's 12th birthday!

Her birthday wish was predictable … clothes and money for more clothes.  She got her wish.

Here are some fun facts about Emma…

She will make you laugh.
Her brother is 12 too for two more weeks.
She eats a lot.
She laughs a lot.
She is remarkably gifted at basketball but insists on playing soccer.
She is God's girl.
She is my girl too.

Happy Birthday Pooh Girl!

Thursday, December 8, 2011

Welcomed Relief!


     Great news today!  Sawyer went to an orthopedic specialist to get a consult regarding his skeletal dysplasia.  The doctor confirmed the dysplasia.  However, it is not severe and he does not see it limiting Sawyer too much in the future.  He even predicted Sawyer could get as tall as 5'7" to 5'10".

     Our most immediate concern was Sawyer's hips. We have not noticed him limping lately.  However, he has not been very active now that soccer season is over.  The doctor was not troubled by what he saw in the x-ray or as he observed him walking. 

     This specialist will follow up in the next few months, but he was encouraging today.  This is a welcomed relief! Karen and I praise God, the One who knit our boy together.

     Sawyer has continued to do well with his dialysis.  Fewer alarms go off in the night and he has a good routine.  He still fights us regarding every medicine he has to ingest, but I'm glad he is a fighter.

     He has not been feeling very well the last few days.  It is not unusual for him to vomit in the mornings.  We thought it was some of his meds making him nauseas.  However, he has been sick without any meds recently.  Not sure what is going on there.  The doctor is aware.

     I have more to share, but no time to type.  Thank you for your continued prayers.  Although I have not been able to update this blog much in recent weeks, many people continue to reach out and let us know they are praying steadfastly.  Very encouraging!!  Karen and I continue to boldly ask God to heal Sawyer and we are heartened to know others do too.