Sawyer finally finished his dialysis. They literally had to pause dialysis (because his catheter failed), leave his blood circulating in the machine, rush him to the PICU for the new arterial catheter and rush him back down to dialysis before his blood expired. These CHKD people are incredible!
It's been a tough day. It broke our hearts to learn there are more issues lurking around the corner (see my last post). Tomorrow is shaping up to be another intense day. We head to the OR around 8:45 A.M. for the surgery to place the peritoneal catheter in Sawyer's belly. Also, Karen and I begin our many hours of training to learn how to care for Sawyer and perform dialysis at home.
This day really stunk. Karen and I woke up anticipating a miracle for Sawyer. Instead, we go to bed greatly disappointed and heartbroken for our boy.
Our disappointment is not in God. Is it His fault that Sawyer is struggling? No. We live in a world that has fallen and, as a result, death, sickness, pain and suffering are all around us. Sawyer is a casualty of this fallen and broken world. So, no... we are by no means disappointed by God. How could we be? He is our only hope. So. we praise Him in this storm.
Sawyer is resting somewhat well at this moment. Thank you for continued prayer. If this mountain continues to grow bigger, it will make a greater splash when it is tossed into the sea.
Sunday, August 21, 2011
Sawyer Update: The Mountain Got Bigger.
Test results show that Sawyer's kidneys have not improved.
As they tried to get his dialysis going today, Sawyer's artierial catheter failed and caused blood to hit in his spinal area. We are having to have another catheter put in right away as he had already started dyalysis. They are rushing him to intensive care to have the procedure done.
While they were trouble shooting the catheter, the x rays revealed an additional abnormality in his hips. Something much more is happening here. The mountain didn't move today, it got bigger.
Sawyer has been through a lot, especially in the last 24 hours. He is getting ready to go through much more today. It is almost impossible to watch. Thank you for praying for God's healing. Pray that He will carry Sawyer today and calm Sawyer with His love.
As they tried to get his dialysis going today, Sawyer's artierial catheter failed and caused blood to hit in his spinal area. We are having to have another catheter put in right away as he had already started dyalysis. They are rushing him to intensive care to have the procedure done.
While they were trouble shooting the catheter, the x rays revealed an additional abnormality in his hips. Something much more is happening here. The mountain didn't move today, it got bigger.
Sawyer has been through a lot, especially in the last 24 hours. He is getting ready to go through much more today. It is almost impossible to watch. Thank you for praying for God's healing. Pray that He will carry Sawyer today and calm Sawyer with His love.
In this deep dark treacherous valley...
In this deep, dark and treacherous valley, we are on a mountain top full of LIGHT and LIFE.
Saturday, August 20, 2011
CRITICAL 24 HOURS...Read ASAP!
Our Mountain
As many know,we were scheduled for surgery on Friday to place the peretonial catheter in Sawyer's belly. This catheter allows him to do dialysis at home in preperation for a kidney transplant.
The doctor says dead kidneys do not regain function. Although, Sawyer's kidneys are not completely dead, there has been no hope given that they will ever work well enough to sustain him. Thus, the transplant.
We felt like we got hit by a BIG MOVING BUS on Thursday when we received this information. Friday morning we were unsettled about the fast track to surgery. In short, we felt that we gave ourselves no opportunity to see God move.
In passages of Matthew 21 and Mark 11, Jesus says "whoever says to this mountain,'Be taken up and thrown into the sea,' and does not doubt in his heart, but believes that what he says will come to pass, it will be done for him."
Sawyer's kidney failure is our mountain. On Friday morning, we told our mountain to move! If Jesus, our Lord, was raised from the dead and one day He will raise us all from death, then these dead kidneys can be resurrected. We have this faith.
Sawyer is no more deserving of healing than any of these other children here. Our hearts break to see them and hear the stories. However, Sawyer's kidney failure is our mountain and we are speaking to it.
We are not commanding God, by no means are we giving Him advice, we are commanding our mountain. To God, we have humbled ourselves, turned away from our sin, sought His face and asked him to heal our son. We will place our trust in Him no matter the outcome.
Our doctor is wonderful. Not only did she post pone the surgery Friday, she has paused Sawyer's dyalysis today so that we can good a good measurement of Sawyer's kidney function before surgery on Monday. We will know if his kidneys have improved sometime tomorrow (sunday).
This is a CRITICAL 24 hours. We told our mountain to move on Friday. We will not know if it did until tomorrow. Those who are willing, will you join me and Karen in asking God today to bring Sawyer's kidneys back to life? Yes, this is a medical impossiblity. Even this morning our doctor told us that she did not expect any improvement. Yet, we still have this hope.
Thank you for your prayers!
As many know,we were scheduled for surgery on Friday to place the peretonial catheter in Sawyer's belly. This catheter allows him to do dialysis at home in preperation for a kidney transplant.
The doctor says dead kidneys do not regain function. Although, Sawyer's kidneys are not completely dead, there has been no hope given that they will ever work well enough to sustain him. Thus, the transplant.
We felt like we got hit by a BIG MOVING BUS on Thursday when we received this information. Friday morning we were unsettled about the fast track to surgery. In short, we felt that we gave ourselves no opportunity to see God move.
In passages of Matthew 21 and Mark 11, Jesus says "whoever says to this mountain,'Be taken up and thrown into the sea,' and does not doubt in his heart, but believes that what he says will come to pass, it will be done for him."
Sawyer's kidney failure is our mountain. On Friday morning, we told our mountain to move! If Jesus, our Lord, was raised from the dead and one day He will raise us all from death, then these dead kidneys can be resurrected. We have this faith.
Sawyer is no more deserving of healing than any of these other children here. Our hearts break to see them and hear the stories. However, Sawyer's kidney failure is our mountain and we are speaking to it.
We are not commanding God, by no means are we giving Him advice, we are commanding our mountain. To God, we have humbled ourselves, turned away from our sin, sought His face and asked him to heal our son. We will place our trust in Him no matter the outcome.
Our doctor is wonderful. Not only did she post pone the surgery Friday, she has paused Sawyer's dyalysis today so that we can good a good measurement of Sawyer's kidney function before surgery on Monday. We will know if his kidneys have improved sometime tomorrow (sunday).
This is a CRITICAL 24 hours. We told our mountain to move on Friday. We will not know if it did until tomorrow. Those who are willing, will you join me and Karen in asking God today to bring Sawyer's kidneys back to life? Yes, this is a medical impossiblity. Even this morning our doctor told us that she did not expect any improvement. Yet, we still have this hope.
Thank you for your prayers!
2 Chronicles 7:14English Standard Version (ESV)
14if my people who are called by my name(A) humble themselves, and pray and seek my face and turn from their wicked ways, then I will hear from heaven and will forgive their sin and heal their land.
Cathing up on Sawyer.
Many of our friends do not have access to Facebook. Therefore, in this blog entry I'm copying all of my Facebook posts from the last few days. From this day forward, all of our updates should be available at www.debause.com or facebook. Thank you for your continued prayers!
Wednesday 8/17/11
The next 24 hours are critical. We slowed this process down anticipating a miracle. However, if his kidneys do not come alive, we will have to proceed with the surgery for the peritoneal catheter on Monday. We stand in confidence that our Lord is mighty to save and we continue to rest in His word.
This is an intense physical and spiritual battle. Your prayers, verses, and kindness mean more thank you know. Thank you.
Wednesday 8/17/11
Taking Sawyer to ER. He has labored breathing, lots of swelling, fever, rash, etc. He had an adenoidectomy fri. Karen and I would appeciate your prayers.
Wednesday at 5:30am via mobileIt looks like sawyer is going to be admitted. He was/is having an allergic reaction. However, multiple tests are showing kidney abnormalities. Your continued prayers are much appreciated.
Wednesday at 7:06am via mobileSawyer's blood pressure and heart rate are too high.
Wednesday at 7:13am via mobileMy battery has almost expired. This will be my last update until I get a charger. Sawyer's condition has not changed. Not sure what to expect here. We covet your prayers and are grateful that God hears us. Its comforting to know that none of this escapes Him.
Wednesday at 8:09am via mobile
Sawyers kidneys have shut down.
Wednesday at 9:14am via mobileKidneys may be operating at 10%.
Wednesday at 9:16am via mobileThis is very intense. But God is revealing Himself to us. Very encouraging and comforting.
Wednesday at 9:18am via mobileDear Friends, thank you so much for your prayers. Right now Sawyer is on dialysis because his kidneys are not working. there are many questions and few answers. However, the doctor performed a biopsy on his kidneys and we are expecting the result after lunch time tomorrow. This should bring answers. Karen are so grateful for all of you that have been praying and trying to contact us.
Wednesday at 5:45pm via mobile ·Many have asked how they can help. My parents are taking care of our other children. Where we need you is in prayer support. Also, we are asking our friends to send us Bible verses. We are reading these verses over Sawyer in prayer. God's Word is powerful. Also, karen and I have been very encouraged as we read these verses. And there have been many! I will continue to read them over him throughout the night.
Wednesday at 6:06pm via mobileThursday 8/18/11
A friend prayed this today: "Lord, we are so grateful for what you have done, desperate for what you can do". We are feeling desperate tonight. Lord, please heal our boy.
Thursday at 12:08am via mobilewe are speaking your prayers and verses over sawyer right now. We have no tests back, but the nurse believes there isincreased kidney production after observing his urine and reduced swelling. Lord, hear the crys of your people. Our boy is no better than any other child suffering in this intensive care unit. However, we boldly ask for your healing touch this morning. Please restore my boys kidneys.
Thursday at 4:04am via mobileSawyer is resting well right now. He is not labored in his breathing (another victory!) So many have been praying with us all night. Thk You!!
Thursday at 5:00am via mobileBalloon popper: doc says no improvement with kidneys.
Thursday at 8:33am via mobile ·Biopsy results coming within the next few hours. 2nd round of dialysis starting now. Cardiologist checking on him as well today. This is going to be a very significant day for Sawyer and the rest of our family. We cherish your prayers and verses that you are sending. We spoke those verses over Sawyer all night long.
Thursday at 11:20am
No results from the biopsy yet. We expect to hear this evening.
Thursday at 4:13pm via mobile
Big Stuff
by Toby DeBause on Thursday, August 18, 2011 at 8:02pmDear Friends, Sawyer's kidneys are very unhealthy. The doctor does not give us hope that they will recover.
Sawyer will have a surgery tomorrow to have a peritoneal catheter placed in his belly for continued dialysis. We will also start the process to get a kidney transplant. Thank you for your continued prayers. I will say more later, but this is the big stuff.
We are so grateful for the outpouring of support. I wish we could return all of the emails, calls, and texts. At the moment it is a whirlwind, we will return them soon. We are heartbroken. However, we serve an awesome God and your love is proof of this. Toby and Karen Gaab DeBause
Friday 8/19/11
Dear friends, we need rest today and to rest in His word. Love you all.
Sawyer's friends from CPC sent him balloons today. A great surprise after returning from dialysis
Saturday 8/20/11
critical 24 hours
by Toby DeBause on Saturday, August 20, 2011 at 7:43amDear Friends, Yesterday Sawyer let us all know that he was "done". He is tired of this place and all of the poking and prodding. The steroid treatment is making him even more aggressive in his anger and irritation.
We have been even more sensitive to him, pushing more conversations with medical staff to the hall way, as Sawyer is no dummy. He processes these conversations and it bring him more anxiety. Pray God's love will calm him.
The next 24 hours are critical. We slowed this process down anticipating a miracle. However, if his kidneys do not come alive, we will have to proceed with the surgery for the peritoneal catheter on Monday. We stand in confidence that our Lord is mighty to save and we continue to rest in His word.
This is an intense physical and spiritual battle. Your prayers, verses, and kindness mean more thank you know. Thank you.
Thursday, January 6, 2011
In the Director's Chair... Will Carter DeBause!
Wednesday, January 5, 2011
Espresso Love
Monday, December 27, 2010
14.2 Inches
 |
| Panorama of DeBause Cul De Sac (double click) |
14.2 inches of snow fell yesterday! Third heaviest snowfall on record for Hampton Roads.
1892: 18.6"
1989: 15.4"
Dec 26th, 2010: 14.2"
Video after the break...
Wednesday, December 8, 2010
Sawyer the Grape Farmer
I guess it promotes growth to smash them first. He even watered them. TD
Sunday, October 10, 2010
DeBause Boys Go Blue.
The boys and I went to the ODU football game last night.
Big Blue lost, but we had a good time...
Sawyer had moments of uphoria, Ben was studying the game, and Will was there for the consessions. All after my own heart!
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